Low Vision News

For low vision specialists and those who consult them

About

Welcome to Low Vision News

This is a new service which will provide a summary of what’s new in Low Vision Research and Rehabilitation.  It is aimed at all of those who work in the low vision rehabilitation community: Optometrists, Researchers, Ophthalmologists, Occupational Therapists, Rehab workers, Teachers of the Visually Impaired and so on.  It is also written with the person with low vision in mind.

The primary aim of this blog is to summarise some of the recent research news relevant to the low Vision Rehabilitation community.  I will also cover conferences, new product launches, and general news of interest.

I am an academic optometrist with an interest in low vision rehab and research.  If you are interested, you can access my research site here. I have no commercial interest in any companies or services allied to low vision and this blog will be completely impartial.  I am based in London, UK, but hope that the blog will be applicable to all of my colleagues globally.

Please follow my Twitter feed: http://www.twitter.com/lowvisionnews and check back here often!

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3 responses to “About

  1. Heather Kirkwood June 29, 2009 at 9:02 pm

    Dear Doctor,
    Best of luck with your blog. I clicked through to the summary article you mentioned on albinism and was only able to read the abstract. (I don’t have a subscription.) I was curious as to whether the article mentioned Hermansky-Pudlak Syndrome? HPS is indeed a rare type of albinism, however, just because it is rare doesn’t mean it shouldn’t be overlooked. I am the vice president of the HPS Network in the United States. We maintain a global registry of HPS patients and have a number of families from the UK. Some even travel to the United States to participate in research here.

    Any advice or assistance you might be able to give about how to generate more awareness of HPS in the UK would be much appreciated. Our families from the UK typically have a very difficult time getting tested. I’m not sure exactly why, except that perhaps HPS isn’t known much.

    Thanks again!

    • lowvisionnews June 29, 2009 at 9:40 pm

      Dear Heather

      Many thanks for your kind message. The article does (albeit briefly) mention HPS: and also Chédiak Higashi syndrome, a rare condition where albinism occurs alongside immunodeficiency and neurological problems.

      I agree entirely that just because a condition is rare doesn’t mean it shouldn’t be overlooked. My suggestion for increasing the knowledge of HPS in the UK would be to contact the Albinism Fellowship (www.albinsm.org.uk) who are a very active organisation for people with albinism and their families.

      Best wishes
      Michael

  2. lowvisionnews July 17, 2009 at 3:17 pm

    My name is Michael Crossland. I have added a link to my research page on the “about” page. I don’t really think it matters though…

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